Roslyn's MS Interview
Name: Roslyn
Age: 48
Diagnosis: RRMS
Location: London, Fulham
Diagnosis: RRMS
Location: London, Fulham
1. When were you diagnosed?
2003
2. What were your early symptoms? What made you thing something was wrong?
Dizziness, numbness, optic neuritis, burning sensation throughout body, not being able to walk in a straight line.
3. What are your top symptoms you deal with every day? Do you use mobility aides?
Symptoms vary. I'm doing ok... No mobility aides.
4. What is your relationship like with your healthcare team? Positive? Wish it could be better?
My healthcare team is great. But I don't see them often enough.
5. Are your family, friends, spouses, coworkers, and neighbors supportive? Did relationships change? Do people you know treat you differently now?
My neighbors are very supportive. I no longer speak to my family, close friends or spouse. My relationships did change. They made my MS about them. Hence, the breakdown in relationships. It's a lot better without them in my life - toxic people.
6. What are some things you loved to do that you had to give up due to having MS?
Being able to run.
7. What are some things you still love to do? What's your passion/hobby?
I've discovered adaptive yoga. I love it and it's so beneficial. I still love meeting new people. I still love to write and I still love my music. All 3 things can lift me and have a positive effect on me.
8. What is the most negative outcome that has come about since having MS?
Losing my family, friends, and spouse.
9. What is the most positive outcome that has come about since having MS?
Learning that I am a good wholesome person. I really like being me.
10. Do you have any pet peeves about MS (labels, ads, peoples views about MS, etc)?
Yes, they are not positive enough.
11. What's your biggest fear with living with MS?
I have none.
12. What's your biggest hope with living with MS?
They find a cure or I can start to run again. That would be wonderful.
13. Best piece of advice you can give another individual living with MS?
Be true to yourself. Listen to your body.
14. How do you feel about the MS community? Social media? Yay or nay? Are you familiar with MS organizations such as the MS Society, MSAA, Multiple Sclerosis Foundation, etc? Have you ever used their services?
I was involved with an online group. I found them unbelievably negative and quite hostile. I raised money for the MS Society UK but I found them very negative and unhelpful.
15. One thing you wish people knew about what it's like living with MS?
The randomness of symptoms and the fatigue. I wish they could understand that for a 1/2 a day or 1/2 an hour.
*I want to thank Roslyn for the interview
**If you would like to follow her, check her out on
Twitter: @cafeinvisible
Instagram: theinvisiblecafe
Crowdfunding: https://www.spacehive.com/the-invisible-caf-
theinvisiblecafe.co.uk
Make a pledge and share share share Thank you hope it’s not too late. Ros (short for Roslyn - only 1 S)
2003
2. What were your early symptoms? What made you thing something was wrong?
Dizziness, numbness, optic neuritis, burning sensation throughout body, not being able to walk in a straight line.
3. What are your top symptoms you deal with every day? Do you use mobility aides?
Symptoms vary. I'm doing ok... No mobility aides.
4. What is your relationship like with your healthcare team? Positive? Wish it could be better?
My healthcare team is great. But I don't see them often enough.
5. Are your family, friends, spouses, coworkers, and neighbors supportive? Did relationships change? Do people you know treat you differently now?
My neighbors are very supportive. I no longer speak to my family, close friends or spouse. My relationships did change. They made my MS about them. Hence, the breakdown in relationships. It's a lot better without them in my life - toxic people.
6. What are some things you loved to do that you had to give up due to having MS?
Being able to run.
7. What are some things you still love to do? What's your passion/hobby?
I've discovered adaptive yoga. I love it and it's so beneficial. I still love meeting new people. I still love to write and I still love my music. All 3 things can lift me and have a positive effect on me.
8. What is the most negative outcome that has come about since having MS?
Losing my family, friends, and spouse.
9. What is the most positive outcome that has come about since having MS?
Learning that I am a good wholesome person. I really like being me.
10. Do you have any pet peeves about MS (labels, ads, peoples views about MS, etc)?
Yes, they are not positive enough.
11. What's your biggest fear with living with MS?
I have none.
12. What's your biggest hope with living with MS?
They find a cure or I can start to run again. That would be wonderful.
13. Best piece of advice you can give another individual living with MS?
Be true to yourself. Listen to your body.
14. How do you feel about the MS community? Social media? Yay or nay? Are you familiar with MS organizations such as the MS Society, MSAA, Multiple Sclerosis Foundation, etc? Have you ever used their services?
I was involved with an online group. I found them unbelievably negative and quite hostile. I raised money for the MS Society UK but I found them very negative and unhelpful.
15. One thing you wish people knew about what it's like living with MS?
The randomness of symptoms and the fatigue. I wish they could understand that for a 1/2 a day or 1/2 an hour.
*I want to thank Roslyn for the interview
**If you would like to follow her, check her out on
Twitter: @cafeinvisible
Instagram: theinvisiblecafe
Crowdfunding: https://www.spacehive.com/the-invisible-caf-
theinvisiblecafe.co.uk
Make a pledge and share share share Thank you hope it’s not too late. Ros (short for Roslyn - only 1 S)
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